ISN Journal summaries on the SONG initiative and public data in research
Kidney International®
The authors of this editorial highlight how research on chronic kidney disease has been hindered by inconsistent and often patient-irrelevant reporting of outcomes.
This challenge prompted the launch of the global Standardized Outcomes in Nephrology (SONG) initiative in 2014 to develop core outcome sets that reflect the shared priorities of patients, caregivers, and clinicians.
These outcomes are now widely supported and increasingly used in clinical trials, treatment guidelines, and registries to ensure research reflects what matters most to patients.
Kidney International Reports®
Public data in nephrology: A researcher’s roadmap
This editorial addresses the barriers that many kidney care researchers face in accessing high-quality datasets, including cost, technical complexity, and limited awareness of available resources.
The authors present nephronexus.com, a curated online directory of public nephrology datasets across biological scales, aiming to enhance data access, promote collaboration, and support more equitable and impactful kidney research.
